Take Steps 2012
- Our CCFA Take Steps walk this past Sunday was a success. Our team, the Poo Crew, has raised nearly $12K and counting (donations are accepted through September) and I personally have raised just short of $1500. Over the past three years our team has raised over $30K and when I think of that my heart swells with pride. We are making a difference, a group of used-to-be strangers, who've come together to fight against diseases who threaten to overtake us every day. Take that Crohn's and colitis.
- As of yesterday, I am now inflicting harm via injection of Humira once a week. I saw both my GI and my rheumy for regular followups and both agree that since I'm seeing a slight improvement on days 2-7 and then back downhill day 8-14, upping my dose to weekly is the next step to trying to get this to really make some progress. I'm praying this helps, because as much as I hate the injection, I want it to work so bad and I will do whatever it takes. Especially since the last week has been a little rougher, I can feel the deep within starts of something ominous and I just do NOT have time for that this summer. So weekly injections it is!
- I was talking to our insurance provider (home owner, car, life) reviewing policies and he asked why hubs has a life insurance policy and I do not -- we had a different agent when hubby got his policy. I explained just simply that I have a number of autoimmune diseases, but didn't say which ones, which prevent me from even getting a small policy. He went on to say that except for diabetes and heart disease, he didn't think it was a problem to try for a policy, oh accept for Crohn's disease too. This is where I laughed and said, "ding ding that's what I have." He just said, "Oh" and we moved on.
- I've been attempting to regularly attend "therapeutic yoga" at our local studio. The description of the class is for those with limitations, that's me:) So anyway, while there the other day we were laying on our backs and were hugging our knees in. The teacher says, now feel your ascending colon being massaged (ok I know sounds crazy, but go with it) and in my head again I'm laughing because if I could feel my ascending colon that would be a miracle since it's in a medical wasteland somewhere;)
I guess the moral of this post is, IBD pops up in my world so randomly but regularly, a reminder of just how forever this disease is. But thankfully I can laugh about it, spread awareness about it and accept my reality knowing that I can choose joy in my life's situation and I am happy.